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10 things not to say to an Endometriosis suffer

  Endometriosis is a lonely condition that can be made worse by people who are trying to be helpful but are saying some of the strangest things.  We know that they are just trying to be helpful but when we are in pain sometimes things people say just make us snap which really affects our relationships and while we try not to get upset it isn’t always easy so I thought I would make a list of 10 things not to say to an endometriosis suffer.  Just take some pain killers and get over it.  But you don’t look sick.  At least it’s not…. Have you tried hot water bottle/ibuprofen/yoga/keto? When will you start trying for children.  Didn’t surgery cure you? I get cramps too.  You’re too young to be sick Mind over matter just think positively.  My daughter, friend. etc has that and she's fine There are so many more but those are the ones that really get to me.  Let me know which you hate hearing the most in the comments. 

Reusable Period products

 Reusable period products can save you so much money if you are willing to give them a try.  I’m the sort of person who has to wear maternity pads every period because of how much I bleed but that leads to horrible pad rash for me so I decided to give reusable products a go and I don’t think I’ll ever go back.  Now I use period underwear and a mensual cup and I still have to use maternity pads on my heaviest day but the rest of my cycle I use my reusable products.  I’m have four pairs of period underwear from three different brands all of them say they are super flow (4 tampons worth) which isn’t the greatest. I have Teo from the same brand (mint brand) and wear them on my first and last day of my period. I use my u by Kotex period underwear on day two and my libra on day four. If I’m going out instead of tampons I’ll insert my period cup.  I know reusable products aren’t for everyone but I would spend so much money on pads to go through them super fast so I fin...

My Book

  My book on endometriosis is now available through Amazon  Endometriosis a rude awakening is my story throughout my journey so far with Endometriosis. it also holds valuable information to do with Endometriosis from the symptoms you can have to general information and statistics. Barnes and Noble Amazon

FAQ about Endometriosis

1:  How common is Endometriosis? Endometriosis affects 1 in 10 women, but because of the misinformation and misdiagnosis, the actual number is unknown.  2: What is Endometriosis  Endometriosis is a condition in which tissue that usually lines the uterus grows outside the uterus. 3: Is Endometriosis a type of cancer? No Endometriosis isn’t a type of cancer, nor can Endometriosis alone kill you.  4: What medications are used to treat Endometriosis? Pain relief, birth control and gonadotropin-releasing hormone (GnRH) agonists. Hormonal medications help slow the growth of the endometrial tissue and may keep new adhesions from forming. These drugs typically do not get rid of endometriosis tissue that is already there. 5: Is endometriosis a sexually transmitted disease or infectious? No. Endometriosis cannot be transferred from one human being to another. The cause of endometriosis is not yet known, but it is not an infectious disease.  6: How is endometriosis diagnos...

The differences between endo, PCOS and Adenomyosis

  While I usually only talk about endometriosis here on my blog, I decided that I wanted to spread awareness on two other conditions that you can have as well as endometriosis, and that’s PCOS (polycystic overt syndrome) and Adenomyosis.  Before I start, let’s go over what each one is.  Google defines endometriosis as A disorder in which tissue that normally lines the uterus grows outside the uterus. With endometriosis, the tissue can be found on the ovaries, fallopian tubes or the intestines. But it can grow anywhere.  Google defines adenomyosis as A condition in which endometrial tissue exists within and grows into the uterine wall. Adenomyosis most often occurs late in childbearing years and typically disappears after menopause Google defines PCOS as A hormonal disorder causing enlarged ovaries with small cysts on the outer edges. The cause of polycystic ovary syndrome isn't well understood but may involve a combination of genetic and environmental factors. So now...

Best places to find endometriosis gifts and awareness merch

 It's come to that time of year again when you might be wanting to buy awareness stuff for endometriosis so I looked all over the internet for shops that sell endometriosis awareness clothing and other goodies to make it easier on you. Bellow will be the website name and link to the merch site/ search term. Feel free in the comments to share other places to buy awareness things. Etsy:  https://www.etsy.com/nz/market/endometriosis_awareness Amazon: {This has a lot of books come up as well}  https://www.amazon.com/s?k=endometriosis&crid=2TMKMJRNV7A7U&sprefix=endom%2Caps%2C412&ref=nb_sb_ss_ts-doa-p_1_5 Red bubble: https://www.redbubble.com/shop/endometriosis Peachy keen: https://peachykeenau.com.au/ Spread shirt: https://www.spreadshirt.com/shop/clothing/t-shirts/endometriosis/ Awareness ribbon gifts: https://awarenessribbongifts.com/shop/endometriosis/

Ways to boost your mood

When you are in pain consistently, your mood can take a turn for the worst. I have spent years in a rut with my emotions because of the consistent and intense pain endo causes. Sometimes all you need is a pick me up and these are the ways that I boost my mood. Rest: Your body goes through a lot so sometimes the best thing to do is rest, That could be to game or take a nap. Relax: I love to relax in a nice hot bath with Epsom salts but relaxing could just be laying in bed with a candlelit or incense  Zone out: I love to either have a podcast, movie or music playing and to just zone the world out.  Do what makes you happy: go out with friends or just do something that makes you feel happy  Exercise and eating well can also impact your mood so try and stay active and eat as well as possible.  

Telling your loved one about endometriosis

 When it comes to starting a new relationship, there is something I always dread. Telling my partner about endometriosis, and while this post isn't just about telling your partner about your endometriosis but any loved on this post will defiantly help you navigate having to tell that special person in your life about your illness. So how do you communicate about living with endometriosis? Learn more about endometriosis: this way, you can give real information to whoever you are talking to without spreading misinformation. Talk about how it affects you personally: Everyone suffers differently, so telling the person how it affects you can make it easier for them to understand; they may have noticed some things like you being more tired randomly or bloating up. This will help them connect your diagnosis to symptoms.  Timing: Timing is everything. My partner will lay down in bed, can be having a conversation, and will be fast asleep seconds later and not remember a thing we talked...

Workouts for Endometriosis

Working out is an essential part of a healthy lifestyle but it can be hard when you are in extreme pain so these are some workouts for endometriosis that are meant to help reduce pain and inflammation. Not all of these will work for everyone, some have helped me and others haven't but the only way to know if it will help you is through trial and error just like everything, this is just a list of exercises and if you want to do more research on the benefits for you and your individual endometriosis.  Swimming Water aerobics Brisk walk Pilates, Yoga and Tai Chi  Bouldering lunges  squats Sit to stands Clams or Side-lying leg raises Don't worry if you cant works out every day or some weeks not at all just try and stay as active as you can and don't compare yourself to everyone else because that won't help with your mental state and remember not all exercise is good for endo like situps and high-intensity workouts. What workouts help you?

Making a period emergency bag/kit

One of the worst things is getting your period unexpectedly with nothing to help if that's in school or work or even if you are just out at a friend or on a road trip, but no matter where it happens or even if it's expected it is always ideal to have a period kit ready to go that can be in your handbag or backpack. It is very easy to make this on a budget as well. what you will need: Pain killers to take the edge off if needed Sanitary products (whatever you use, reusable products, tampons, pads, or even a period cup or two.) Spare pair of underwear A snack  Sanitary wipes to clean up Bag for used products (for if you are somewhere you cant dispose of disposable sanitary products or to store used products to take home to clean if it's reusable) Bag to store everything in so its easy to grab hand sanitiser for if you get blood on your hands and need to clean up quick Of course, if you think of anything else that could be useful then add that in as well this is just what I fo...

Testing period apps

One thing I find hard about tracking my period is finding the right app to make sure that while I'm on the go, I can be protected. I know my cycle is twenty-six days long and lasts five days, and I also know my luteal phase is Twelve days long. I feel my ovulation cramps start (yes I can feel when I ovulate and its surprisingly always be accurate) I normally use Ovia Fertility and find it is always spot on but it got me thinking there are so many period apps out there that I wonder how accurate that would be for me and my cycle. I have tried a few before that I find haven't been correct, but I was determined to find the best app once and for all. Not only for myself but for you ladies too.   I went back on my Ovia feed and recorded every single period I have had in 2020 and put it onto twelve different apps and waited a month to see which one would be correct. I decided to download: Clue Endometrix Eve Flo Flutter My endo app QENDO Visana Period diary Period tracker And apple h...

How To Cope With Pain

If you have a chronic illness (or even if you live in pain on the daily) even if it isn't endometriosis you know that pain can be hard to handle especially when it is recurring and nothing seems to help so here is a list of five ways to cope with endometriosis pain, leave in the comments what you use to deal with your pain. now I want to start by saying pain killers but that is a lie, well for me at least. my pain killers don't work sadly and all they do is put me to sleep which I guess can be a good thing because I get very little sleep when I am in pain. tens machine:   A transcutaneous electrical nerve stimulation ( TENS )  unit  is a device that sends small electrical currents to targeted body parts. These currents are used to relieve pain. I find this helpful because It distracts my mind enough that the pain numbs a tad so it isn't so intense. weighted blanket: I love my weighted blanket, it is exactly that a blanket that is weighted. they are meant to ...

Songs i listen to when in pain

being in pain on the daily sucks but you get used to it. its flare-ups you have to watch out for because that shit makes the pain worse. one thing i do in a flare-up or high pain day is listening to music, i have a full playlist on Spotify of songs i love to listen to that is open to the public.  Spotify link  but here are some of my go-to songs to try and feel better. 1.) fighter by Christina Aguilera 2.) beautiful by Christina Aguilera 3.) you don't own me by say grace, g-easy 4.) superwoman by Alicia keys 5.) fight song by Rachel platten i love these songs because they make me feel strong like i can beat this pain and get back to normal and they also just distract me from everything going on for a few minutes which is sometimes all you need.

My YouTube Videos On Endometriosis

I run a youtube channel, and while I talk about a range of topics on my channel, I also try and educate people on endometriosis because there are so many misconceptions about this chronic illness. This post is kind of different in the fact that every time I make a youtube video on this condition, I will be updating this post with all of that information as well as the playlist with all the videos. Playlist:  My Condition: Endometriosis what's in my period bag | endometriosis edition endometriosis update | June 2019   day in the life with endometriosis Huge endometriosis breakthrough September and October endometriosis update they put me on what | endometriosis update Feb 2019 My condition endometriosis my pain spots | endometriosis edition making endometriosis art E ndometriosis myths E ndometriosis facts E ndometriosis pictures to explain E ndometriosis Q&A Part 1 Endometriosis Q&A Part 2 Endometriosis update | February 2020 My Experien...

My endometriosis journey

TMI warning, blood, and all the beautifulness of female periods  this blog post is about a brief overview of how i found out about my suspected endometriosis and the journey so far that i have had with this illness my journey with this condition started when i was around six or seven years old when i had my first period. yes, i was an early bloomer.  my periods were irregular until i was nine years old. my mum always knew when another period was about to hit because i started getting pain from ovulation though until my period finished and i was very moody so she just knew. i was in and out of doctors for the pain for years, at ten i was put on birth control to try and stop my ten-fourteen day periods that were very heavy down to seven days which worked but not with the flow. at this point, i was missing a few days of school a month. by age fourteen i was in and out of the emergency room and different doctors for the pain, i was vomiting, curled up in pain, missing tw...

My 5 Endometriosis must haves

As an Endometrisoisis suffer i am no stranger to debilitating pain on a consistent basis, because of this i have found a few things that work for me and i am going to share my must-have endometriosis items.   castor oil pack-  now these are super easy to make and i actually have a tutorial on my youtube channel on how to make one  click to go to the video . i love these because they actually help reduce my bloating if i catch it in time. electric blanket-  now i don't mean the ones that you put under the sheets on your bed i mean the ones you take with you on the couch and plug into the powerpoint, they are also known as heating pads in America.    coffee-  i do know this doesn't help everyone but for me at least when i get really crampy and its that kind of pain you get with bowel endometriosis that is so painful but you can't physically go  (if you know then you know)  coffee helps me get things moving  *TMI*  and he...