1.) Shireen Hand, the creator of Endometriosis: My Life with You , struggled with endometriosis from 12 years of age until her diagnosis at age 21. 2.) In The Endo the World , Clarie Barker shares how her life has been altered since her 2014 endometriosis diagnosis. She also documents her experience with adenomyosis. 3.) endo black, Lauren R. Kornegay was diagnosed with endometriosis at age 20 after a series of events led her to visit a gynecologist while attending college in Baltimore.