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Juggling being a mum with Endometriosis

  Being a man with endometriosis is hard work especially when you’re in a lot of pain and you have a child that is demanding attention and needing loved and cared for but it’s not impossible.  Painkillers that work for you or having a pain management routine that helps you is beneficial in many ways whether you’re a parent or not but when you have a child that really needs attention and you’re in a lot of pain it can be a lot of hard work and it can actually cause you’re a lot more pain.  You can experience feelings of being a failure or a bad parent because of not being able to do as much with your child, my daughter loves going to the park and I don’t have a backyard at the house I live at when I’m writing this back in January but when I’m having a really bad day I find it hard to be able to walk to the park to take her so I feel like a bad parent. I have found ways to manage and you will too if you become a parent you are a parent but it’s not without feelings of failu...

Why ultrasound isn’t good at detecting endometriosis

  An ultrasound doesn’t provide all the information needed to diagnose endometriosis. But it can offer clues that your provider can use to decide next steps when it comes to making a diagnosis. An ultrasound can provide information that your provider uses to suggest treatments, too. Ultrasounds can show large clumps of tissue that are likely signs of endometriosis. Ultrasounds are also very good at identifying endometriosis of the ovaries. But ultrasounds can’t show tiny pieces of tissue that may also be signs of endometriosis. Not all tissue is the same with endometriosis. Ultrasounds can show some, but not all, types of tissue. An ultrasound can show: Endometrial tissue that’s turned into cysts (endometriomas). Endometrial tissue that’s embedded deeply in an organ (Deeply infiltrating endometriosis, or DIE). An ultrasound can’t show: Endometrial tissue that’s tiny and on the surface of an organ. The tricky part is that even if the ultrasound shows tissue that doesn’t belong, ther...

What makes Endometriosis worse

  What makes endo worse? While this will depend on the person Hormone changes that occur with a menstrual cycle  can make endometriosis pain worse as well as fatty foods, such as red meat and [high-fat] dairy foods that may be high in PCBs and dioxins

How to prepare for surgery

During your Pre–Op phone call, the nurse will ask you questions about your health history and give you important Pre–Op instructions. Take a shower with an antibacterial body wash with chlorhexidine the evening before your surgery. You can find this type of body wash (such as Hibiclens®) in the First Aid section of a pharmacy. • You shouldn't have anything to eat or drink after 11:30pm (or other time specified by the Pre–Op nurse). This includes mints, candy and chewing gum. An empty stomach lowers the risks of anesthesia. It's very important to follow this rule. You may brush your teeth in the morning, but don't swallow the water. Depending on the time of your surgery, these instructions may be changed slightly — the nurse will let you know if there are any changes during your Pre–Op call.

How to talk to your surgeon/specialist

  Talking to your specialist can be hard but just remember they are just like any doctor so talk to them how you would any one else. Have any questions ready either on your phone or a piece of paper so you don’t feel on the spot and forget any questions.  If you feel discriminated against or not heard look for a second or third opinion you deserve someone who’s going to listen to you. 

Dealing with endometriosis and relationships

  Endometriosis can have a significant impact on quality of life, not just for women with the condition but also for those who are close to them – including partners, family and friends.  Endometriosis can have a considerable impact on day-to-day life including working lives, childcare, everyday tasks and social lives. This may create an extra strain on couples. Endometriosis can have a significant impact on social lives. Feeling restricted and feeling a sense of loss can affect both partners. Couples may find that seeking an effective treatment is an ongoing battle – this can cause frustration for both partners Couples may need to discuss if and how women would like their partners to help them make healthcare and treatment decisions. They may also need to discuss what partner’s roles will be in consultations if they attend. Women and their partners may have differing views on how endometriosis should be treated and managed. For example, research suggests that men may be more ...

Will I still have Endometriosis after a hysterectomy

  Will I still have Endometriosis after a hysterectomy?  Yes you will, a hysterectomy doesn’t cure endometriosis, there is no cure but it can decrease symptoms if you are like me and get more pain when bleeding. 

How to deal with pain my tips

  - hot water bottle  - hot bath - pain killers - TENS Machine  - heating pad - mediation 

Stages of endometriosis

  Endometriosis is classified into one of four stages (I-minimal, II-mild, III-moderate, and IV-severe) depending on location, extent, and depth of endometriosis implants; presence and severity of adhesions; and presence and size of ovarian endometriomas.  Most women have minimal or mild endometriosis, which is characterized by superficial implants and mild adhesions.  Moderate and severe endometriosis is characterized by chocolate cysts and more severe adhesions.  The stage of endometriosis  does not correlate with the presence of or severity of symptoms; with stage IV endometriosis, infertility is very likely 

My favourite endo blogs

  1.) Shireen Hand, the creator of  Endometriosis: My Life with You , struggled with endometriosis from 12 years of age until her diagnosis at age 21.  2.)  In The Endo the World , Clarie Barker shares how her life has been altered since her 2014 endometriosis diagnosis. She also documents her experience with adenomyosis. 3.) endo black,   Lauren R. Kornegay was diagnosed with endometriosis at age 20 after a series of events led her to visit a gynecologist while attending college in Baltimore.  

Risk factors for having endo

  Something I’m asked a lot is does having Endometroisis put me at risk? And in todays blog post I want to talk about it.  Although ovarian cancer occurs at higher rates in women with endometriosis,  the overall lifetime risk is low to begin with . Some studies suggest that endometriosis increases that risk, but it's still relatively low. Endometriosis can cause uterine tissue to grow in the intestines in anywhere from  3 to 37 percent of women Trusted Source  with the condition. In rare cases, the tissue can cause bleeding and scarring that leads to  intestinal obstruction (blockage of the intestine). A small bowel obstruction can cause symptoms such as stomach pain, nausea, and problems passing gas or stool. If left untreated, a bowel obstruction can cause pressure to build up, possibly resulting in a bowel perforation (a hole in the bowel). A blockage can also decrease blood supply to the intestines. Both can be fatal. Ectopic pregnancy An  ectopic ...

My favourite Endometriosis products

  Endometriosis is a hard condition to live with, but it doesn't have to be as hard as it is; with the right products (for each individual person, these products will be different), it can be made a lot more manageable. These are the products I use that I find to make my periods and endometriosis a lot more bearable to live with. 1.) tens machine: a tens machine, also called a  transcutaneous electrical nerve stimulation machine, sends  mild electric currents through to some areas of the skin. I find this helpful because it distracts my brain from the pain I feel from my endo. 2.) period underwear: period underwear doesn't give you pad rash, and I find it fits more comfortably thought-out the day, making it easy to forget you are bleeding. 3.) bubble baths: not only are bubble baths relaxing, but the heat can really help to relieve pain. 4.) CBD oil: I find CBD oil not the greatest but it does help take the edge off my cramps enough that i can semi function on a low pai...

10 things not to say to an Endometriosis suffer

  Endometriosis is a lonely condition that can be made worse by people who are trying to be helpful but are saying some of the strangest things.  We know that they are just trying to be helpful but when we are in pain sometimes things people say just make us snap which really affects our relationships and while we try not to get upset it isn’t always easy so I thought I would make a list of 10 things not to say to an endometriosis suffer.  Just take some pain killers and get over it.  But you don’t look sick.  At least it’s not…. Have you tried hot water bottle/ibuprofen/yoga/keto? When will you start trying for children.  Didn’t surgery cure you? I get cramps too.  You’re too young to be sick Mind over matter just think positively.  My daughter, friend. etc has that and she's fine There are so many more but those are the ones that really get to me.  Let me know which you hate hearing the most in the comments. 

Reusable Period products

 Reusable period products can save you so much money if you are willing to give them a try.  I’m the sort of person who has to wear maternity pads every period because of how much I bleed but that leads to horrible pad rash for me so I decided to give reusable products a go and I don’t think I’ll ever go back.  Now I use period underwear and a mensual cup and I still have to use maternity pads on my heaviest day but the rest of my cycle I use my reusable products.  I’m have four pairs of period underwear from three different brands all of them say they are super flow (4 tampons worth) which isn’t the greatest. I have Teo from the same brand (mint brand) and wear them on my first and last day of my period. I use my u by Kotex period underwear on day two and my libra on day four. If I’m going out instead of tampons I’ll insert my period cup.  I know reusable products aren’t for everyone but I would spend so much money on pads to go through them super fast so I fin...

My Book

  My book on endometriosis is now available through Amazon  Endometriosis a rude awakening is my story throughout my journey so far with Endometriosis. it also holds valuable information to do with Endometriosis from the symptoms you can have to general information and statistics. Barnes and Noble Amazon

Unknown information

  There is a lot of unknown information about endometriosis and a lot is known but not commonly shared which is what I am going to do today.  1.)  Inguinal endometriosis  is a rare condition, accounting for 0.3%–0.6% of patients affected by endometriosis, with fewer than 60 cases reported in the literature. inguinal Endometroisis   usually presents as painful/tender inguinal mass and is most often mistaken for incarcerated hernia and other inguinal lesions 2.) Endometrisis can spread to the lungs and brain 3.) endometrisis has been found in males but  Only a few cases of endometriosis in me n have been reported in the literature 4.) endometrisis has been found in infants 5.) Women in the deep endometriosis group had a statistically significant excess of blue eyes and a reduced proportion of brown eyes

The differences between ablation and laparoscopic surgery

Today we will be talking about t he differences between ablation and  laparoscopic . Pros and cons of both First let’s look at Endometriosis  ablation.  ablation Is when they is a procedure that surgically destroys (ablates) the lining of your uterus (endometrium). The goal of endometrial ablation is to reduce menstrual flow. In some women, menstrual flow may stop completely. No incisions are needed for endometrial ablation. Your doctor inserts slender tools through the passageway between your vagina and uterus (cervix).   Pros Periods should lighten or stop completely within a few months. Uterus and other pelvic organs remain intact. Minimally invasive, no incisions  Often results in improved quality of life for most women Cons Not recommended if you still want to have children Pregnancy after ablation, while rare, carries risk of miscarriage and complications. Bleeding may still occur after ablation, a hysterectomy may be needed in the future. The procedure ca...

How I parent when in loads of pain from my endometriosis

 Parenting is a 24/7 job, especially when you are a stay at home parent. Through sickness and health you have to be their for them and that includes when you are in pain.  My daughter is almost a year old and I now have a lot of experience of parenting through pain, I will admit I was nervous at first but since then I have learned ways to manage and still be the best mother possible.  When I feel my pain increase to a dangerous level  indicating that I might not be able to walk the next day I prepare my daughter‘s food and everything she’ll need for the day and put it on the end of my bed so that if I can’t walk I can still care for her the best way I can.  Because pain killers don’t work for me if I just have cramps I will curl up on the couch and turn on the television for her and let her roam the house only getting up if she needs me or wants me.  I am partially lucky because being around kids knowing I have to look after them puts a mental block on the ...

Five Misconceptions about endometriosis

  Because not a lot is known about Endometriosis there is a lot of misconceptions out there about this terrible condition and I will be covering five of them today and debunking them.  One: everyone has painful periods This one really annoys me because periods are meant to be uncomfortable but not painful, if you have painful periods there is something underlying causing the pain like Endometriosis but it doesn’t always have to be Endometriosis.  Two: The symptoms is just heavy bleeding and pain Again this one really annoys me because there is a lot more to Endometriosis than just heavy bleeding and pain which definitely are common symptoms but it can cause so many more issues for woman and some woman might not even have any symptoms at all.  Three: Endometriosis only affects the pelvic region  Now the most common place for Endometriosis is the pelvic region but this horrible condition spreads like fire all around the body and has even been found in the lungs an...

FAQ about Endometriosis

1:  How common is Endometriosis? Endometriosis affects 1 in 10 women, but because of the misinformation and misdiagnosis, the actual number is unknown.  2: What is Endometriosis  Endometriosis is a condition in which tissue that usually lines the uterus grows outside the uterus. 3: Is Endometriosis a type of cancer? No Endometriosis isn’t a type of cancer, nor can Endometriosis alone kill you.  4: What medications are used to treat Endometriosis? Pain relief, birth control and gonadotropin-releasing hormone (GnRH) agonists. Hormonal medications help slow the growth of the endometrial tissue and may keep new adhesions from forming. These drugs typically do not get rid of endometriosis tissue that is already there. 5: Is endometriosis a sexually transmitted disease or infectious? No. Endometriosis cannot be transferred from one human being to another. The cause of endometriosis is not yet known, but it is not an infectious disease.  6: How is endometriosis diagnos...